A Cross-Border Perspective On Pathologic Diagnosis of Rare Cancers

This event was hosted by Ms Zofija Mazej Kukovič, MEP, at the European Parliament, Brussels and supported by Alojz Peterle, MEP.  MEPs and a Member of the European Commission responsible for European Reference Networks were presented with findings and asked to comment on how to implement the recommendations.

Welcome and Introductory Remarks

Zofija Mazej Kukovič MEP

• A Cross-Border Perspective On Pathologic Diagnosis of Rare Cancers

Rare Cancers Europe: A Working Consensus

Paolo G. Casali, Chair of ESMO Public Policy Committee, RCE:

• A working consensus on Pathologic Diagnosis of Rare Cancers (pdf)

Angelo Paolo Dei Tos, Director of the departments of Pathology & Oncology Treviso, Italy

• The Pathology of Rare Cancers (pdf)

Issues Facing Rare Cancer Patients in Europe

Jayne Bressington, Eve's Mum, Trustee GIST Support UK, Patient Director of the PAWS-GIST Initiative, Patient Advocate - Children's Cancer CRG, NHS England

• Issues Facing Rare Cancer Patients in Europe (pdf)

Issues Facing Research For Rare Cancers in Europe

Anne Mathieu-Boue, MD, Novartis, Industry Partners of RCE:

• Issues Facing Research For Rare Cancers in Europe (pdf)

Anastassia Negrouk, Head of International Regulatory and Intergroup Office, EORTC

• Issues in Rare Cancer Research in the EU - EORTC perspective (pdf)

Development of European Reference Networks

Annika Nowak, Team Leader, Health Systems Unit, DG SANCO

Next Steps & Discussion

Concluding Remarks and Summary

Zofija Mazej Kukovič MEP