The ESMO Patient Advocates Working Group (PAWG) main mission is the optimisation of patient care in Europe and worldwide, the continuous improvement of cancer-specific information and education, the strengthening of patient autonomy and the support of patient rights.
Activities and responsibilities
- Providing adequate information about cancer, its diagnosis, treatment, palliative care and aftercare
- Organising meetings where patient organisations and individuals have the opportunity to express their wishes, concerns and requests
- Interacting with patients to share concerns and experiences and developing action plans for strengthening the role of patients in the oncology community
- Helping physicians and other healthcare providers to understand the specific needs of individual patients, to enhance the quality of communication and personal interaction
- Building strong coalitions between patient representative groups, cancer physicians and other healthcare providers in order to improve the quality of cancer care
- Assisting physicians in obtaining advice from specialists for rare or complex cancer cases
2022-2024 ESMO Patient Advocates Working Group (PAWG)
Chair
- Tanja Spanic, Europa Donna, Slovenia
Committee Members
- Agata Polińska, Alivia-Fundacja Onkologicza, Poland
- André Deschamps, Europa Uomo, Belgium
- Anne-Marie Baird, Lung Cancer Europe, Ireland
- Chris Curtis, The Swallows. Head and Neck cancer support group, United Kingdom
- Eva-Maria Stromsholm, Gynecological Cancerpatients, Finland,
- Jana Pelouchova, Diagnoza Leukemie, Czech Republic
- Natacha Bolaños, Lymphoma Coalition, Spain
Chair
- Tanja Spanic, Europa Donna, Slovenia
Committee Members
- Natacha Bolaños, Lymphoma Coalition, Spain
- Chris Curtis, The Swallows. Head and Neck cancer support group, United Kingdom
- Estelle Lecointe-Artzner, Sarcoma Patients Euro Net, France
- Sarah Lindsell, The Brain tumour charity, United Kingdom
- Jana Pelouchova, Diagnoza CML, Czech Republic
- Agata Polińska, ALIVIA - FUNDACJA ONKOLOGICZNA, Poland
- Vlad Voiculescu, MagiCAMP, Romania
Chair
- Bettina Ryll, Melanoma Patient Network Europe (MPNE), Sweden
Chair Elect
- Vlad Voiculescu, Romanian Health Observatory, Romania
Committee Members
- Ananda Plate, Myeloma Patients Europe (MPe), Belgium
- Charlotte Roffiaen, Independent, Italy
- Fredrik Johansson, Swedish Lung Cancer Advocacy, Sweden
- Isabelle Lebrocquy, OPUCE, The Netherlands
- Jan Geissler, CML advocates Network, Germany
- Kathy Oliver, International Brain Tumour Alliance (IBTA), UK
- Nicolas Philippou , Cyprus Association of Cancer Patients and Friends (PASYKAF), Cyprus
- Tanja Spanic , Europa Donna, Slovenia
Last update: August 2022